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- Archive-name: medicine/chronic-fatigue-syndrome/cfs-guidelines
- Posting-Frequency: weekly
- Last-modified: 1995/2/20
-
- From: CFS-L@LIST.NIH.GOV
-
- Topics, Rules and Information for CFS-L / alt.med.cfs
-
- This discussion group on chronic fatigue syndrome is distributed both by
- e-mail subscription as the CFS-L list, based at LISTSERV@LIST.NIH.GOV, and
- as Usenet newsgroup alt.med.cfs. Please read the following rules and
- notices.
-
- TOPICS:
-
- Most messages can be appropriately posted to the basic 3 topics of
- <none>, MEDical, or RESearch. The definitions of the designated
- topics are as follows:
-
- <no keyword>: This open category is appropriate for almost all postings
- except those dealing with medical issues, research, social
- chatter, and other special topics as listed below. (When
- using Listserv commands, refer to this topic as OTHER.)
-
- MEDical: medical care issues which are likely to have been discussed before,
- i.e. treatment and diagnosis questions for individual cases, for
- CFS or any related condition (warning: messages on this group cannot
- serve as medical advice); how to find a doctor; how to handle your
- doctor.
-
- RESearch: scientific discussion and news items about the illness; treatment
- and diagnosis issues which pertain to CFS patients as a class (i.e.
- not individual cases); news items about new research,
- publications, conferences, media reports.
-
- CHAT: humor, and social discussion about non-CFS issues.
-
- ADMIN: for discussing issues about this group itself; the rules, how they
- are applied, possible new topic categories.
-
- FAQ: special notices for "frequently asked questions"; the formal notices
- will be posted by the moderator only, but follow-up discussion about
- them or how they may be improved may be posted here
-
- Please see that your messages contain a designated topic keywords (see
- below) in the Subject: line when appropriate. These keywords enable
- greater participation from the e-mail side of this group. The keywords
- must end with a colon with no intervening blank, e.g. ADMIN: . Multiple
- keywords must not be separated by a blank, e.g. ADMIN,MED: .
-
- E-mail subscribers can restrict received messages to only selected topics
- by sending a command in the form of SET CFS-L TOPICS topic1 topic2 etc. as
- an e-mail message to the address LISTSERV@LIST.NIH.GOV. By default, all
- new subscribers receive all topics. To later add additional topics, you
- can send a command in the form of SET CFS-L TOPICS +topic1 topic2. To
- delete certain topics, send a command like SET CFS-L TOPICS -topic1 topic2 .
- The open, "no keyword" topic may be refered to as OTHER. To see your current
- topics setting, send the command QUERY CFS-L. Digest and Index subscribers
- receive all messages regardless of topic.
-
- An abbreviation unique to the topic keyword vis-a-vis the other keywords
- may be used in place of the full keyword, and is encouraged. Please use
- the abbreviations as shown.
-
- ------------------------------------------------------------------------
- CFS Group -- TOPICS Cheat Sheet
- (print out and keep near your keyboard)
-
- <none> all except medical, research, chat and others shown below
- MED: medical care, individual cases
- RES: scientific discussion about the illness, CFS patients as a class
-
- CHAT: humor, social talk
- ADMIN: about the CFS group
- FAQ: special notices on "frequently asked questions"
-
- never reply blindly, always check your Subject:
- topic keywords always include a colon, never a blank
-
- ------------------------------------------------------------------------
-
-
- RULES:
-
- 1. On topic: Messages posted to this group must be limited to the topic of
- chronic fatigue syndrome.
-
- 2. No advertisements: Commercial advertisements are not allowed on this
- group. This rule is in place in part because of group sentiment, but also
- because this group's messages are distributed through the assistance of the
- NIH Computing Center, a U.S. government agency, and allowing commercial
- advertisements through the group would be an improper use of government
- facilities. Participants may post reviews of consumer products or services
- in which they have no financial interest.
-
- 3. No flames.
-
- a. Accent the positive: When posting messages, please comment on ideas
- and make positive suggestions. Please do not personally criticize other
- participants. Also, political discussions should be brief, and for the
- most part should be conducted on the CFIDS-L group (see notice B below).
-
- b. Refer flames to the moderator: If you are personally criticized,
- please do not respond directly on the group but instead bring the matter
- to the attention of the list-owner privately (i.e., Roger Burns at address
- CFS-L-REQUEST@LIST.NIH.GOV). If everyone responds directly to "flames",
- then the other person may exercise their right to respond, and soon we'll
- have a spiraling melee. Please bring concerns to the moderator.
-
- 4. Proper subject and topic keywords: Post your messages to the
- appropriate topic keyword, as described in the scheme listed above. Also,
- when replying to messages please don't automatically use the original
- message's Subject:, but review your message and alter your Subject: if
- your message contains key ideas that are not captured by the default
- Subject. Pay special attention to insert the proper topic keyword for
- your reply and don't automatically use the keyword for the original
- message you're replying to. This will make message-searching more
- effective for all. The special topic keyword ALL: is reserved for use by
- the moderator only.
-
- 5. Short quotes: When replying to messages, please don't quote the entire
- original message, but only that part of the message you are commenting on.
- A little bit of cutting will save much reading time for the hundreds of
- readers on this group.
-
-
- NOTICES:
-
- A. Disclaimer: Any advice which may be given on this list regarding
- diagnoses or treatments, etc., reflects ONLY the opinion of the individual
- posting the message. Those who have CFS are urged to consult with a
- licensed health care practitioner who is familiar with the illness.
-
- B. Posting privileges: This group is moderated. Those who would like be
- able to post messages directly to the newsgroup alt.med.cfs should register
- for direct posting privileges by doing the following: send the commands
-
- SUB CFS-L YourFirstName YourLastName
- SET CFS-L NOMAIL
-
- as an Internet e-mail message to the address LISTSERV@LIST.NIH.GOV.
-
- C. Technical advice / message archives: For advice and information about
- this group and its message archives, and about other CFS groups and
- resources on Internet/Usenet, read the CFS Internet help file. To obtain
- the file, send the command GET CFS NET-HELP as an e-mail message to the
- Internet address LISTSERV@LIST.NIH.GOV.
-
- D. News sources: Readers of this group are advised to also follow the
- CFS-NEWS electronic newsletter and the CFS Newswire service. These are
- described in the CFS NET-HELP file mentioned in notice C above.
-
- E. CFS info: General resources on CFS information are described in the
- CFS-RES TXT file. To obtain it, send the command GET CFS-RES TXT file to
- the address LISTSERV@LIST.NIH.GOV. Other detailed files, some of which
- contain the text of medical journal articles, are stored at the CFS-FILE
- and CFS-D file bases, which are described in the Internet help file
- mentioned in notice C above.
-
- F. Other networks: For information about CFS discussion groups and
- resources on other networks and on BBSs, read the "CFS/ME Electronic
- Resources" guide. To obtain an electronic copy, send the command GET
- CFS-NET TXT as an e-mail message to address LISTSERV@SJUVM.STJOHNS.EDU.
-
- For further advice, contact the moderator, Roger Burns at address
- CFS-L-REQUEST@LIST.NIH.GOV.
-
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